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Compassionate Care for Huntington’s Disease – Supporting You Every Step of the Way

Published on July 18, 2025 | Updated on July 20, 2025
Compassionate Care for Huntington’s Disease – Supporting You Every Step of the Way
Huntington’s disease is a complex and progressive neurological condition that impacts movement, cognition, and behaviour. At Openhearted support, we offer tailored therapeutic support and NDIS-registered services to help individuals and families navigate life with Huntington’s disease with dignity, comfort, and confidence.

🔍 Understanding Huntington’s Disease

Huntington’s disease (HD) is a rare, inherited neurological condition that gradually impacts:

  • Muscle coordination and mobility (chorea)
  • Mental processing and memory
  • Behaviour and emotional regulation

    • As symptoms progress, individuals may face difficulty with walking, speaking, eating, and managing daily activities. This is where compassionate, consistent support becomes crucial.

    How OpenHearted Support Helps with Huntington’s Disease

    We provide holistic, NDIS-registered services tailored to the unique needs of individuals living with Huntington’s. Our multi-disciplinary approach includes:

    🧑‍⚕️ Physiotherapy

  • Improve strength, balance, and mobility
  • Minimise falls and injuries
  • Assist with movement strategies and walking aids

    • 🧘 Occupational Therapy

  • Modify daily tasks to preserve independence
  • Recommend assistive equipment (grab rails, seating, etc.)
  • Conduct home assessments for accessibility

    • 🗣️ Speech Therapy

  • Support with communication challenges
  • Help with swallowing and safe feeding
  • Implement AAC (Augmentative and Alternative Communication) systems

    • Home Modifications with Fabnest Building Group

    To ensure a safe and accessible home environment, we’ve partnered with Fabnest Building Group — specialists in NDIS-funded home modifications. Together, we offer:

  • Wheelchair-accessible bathrooms and kitchens
  • Ramps, rails, and safe entryways
  • Functional changes for daily independence

    • NDIS Support for Huntington’s Disease

    If you or your loved one is living with Huntington’s disease, you may be eligible for:

  • Therapeutic supports (physio, OT, speech)
  • Core supports (daily personal care, social activities)
  • Assistive technology
  • Home modifications
  • Supported Independent Living (SIL) or Short-Term Accommodation (STA)

    • We help you navigate the NDIS application, review process, and support coordination if needed.

    Everyday Tips for Families Living With Huntington’s

  • Establish predictable routines for comfort
  • Use adaptive utensils and assistive tech early
  • Encourage regular light exercise (e.g., walking, seated stretches)
  • Promote communication with non-verbal cues or devices
  • Reach out for respite or community support when needed

    • 📞 Contact OpenHearted Support

    We’re here to walk with you every step of the way. If you’re looking for a caring, reliable, and experienced team to support Huntington’s care through the NDIS, reach out to us today.

    📍 OpenHearted Support

    🌐 www.openheartedsupport.com.au

    📧 admin@ohsupport.com.au

    📞 1800 976 186

    📍 Serving Melbourne and surrounding areas.